And Now I’m That Crazy Bitch

And….I feel like an asshole. And make no mistake, it’s not just a feeling. Do you remember the first time you showed up to a dinner party without bringing something–wine, a dish, flowers? And everyone else had brought some kind of hostess gift and you were like fuck am I some kind of neanderthal? Why...
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Five Ways I’m Getting Over My Bad Day

Still haven’t heard back from my doctor.  It’s Tuesday. I asked the office to have him call me on Friday. I sent an email on Saturday. Nada. Somewhere, out there, there’s $500 worth of shoes I could have bought with the money I was using to insure my medical care. But what of it!? I’m...
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Hang In There.

Do you miss me yet? I missed you too. Don’t be mad. I promise it’s for a good reason. Two-hundred plus good reasons. I’m like at the edge, the verge, the very precipice of success. Of finishing the book. Of catching up on Kendra on Top. My deadline is drawing closer and closer, and while I’m not...
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Calling All Caregivers: Share Your Story for New Book

[PLEASE READ ENTIRE POST BEFORE SENDING IN RESPONSES] Whether its your children, spouse, relative or friend–if you consider yourself the caregiver of a patient with chronic illness–I’d like to hear from you! I’m looking for caregivers of patients to respond to the following question for inclusion in a book I’m working on (to be published...
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Creaking and Cleaning

I’ve been in the midst of a major cleaning spree this week. My sister is coming to town next week for my Nana’s birthday and Thanksgiving and traditionally when my sister comes I clear out my closet and hand over anything that looks even remotely tight on me. She, being a few sizes smaller than...
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Catching Up With the RARE Daily

So this is kind of my new thing. In the past I’ve loved doing video blogs an will continue to do them about all of the inane experiences I have with my own personal medical odyssey. But Global Genes has given me the opportunity to host a weekly catch-up video for The RARE Daily. So...
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