I’m Here Because Why?

I am supposed to be on a plane right now. But instead I’m sitting on my couch experiencing a faux diabetic coma from eating a cinnamon bun from Flakowitz. It wasn’t even my fault–and had you had told me I wouldn’t be on that plane today, I would immediately assumed my airplane anxiety would have...
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Baggage

I have not been having a good week with customer service. It seems like every sandwich I have made and every prescription I need called in somehow gets lost in translation. It’s been really frustrating because there are so many fine details to so many things that should be so simple. I can’t have cheese...
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The Wedding: Coming Soon

Tomorrow (Saturday) night is the day I’ve long been waiting for: my wedding! The preparation for this wedding has highlighted all of the blessings in my life. My sister flew in from across the country to host my bachelorette party–and the time and effort (and stress!) she put into the celebration brought me to tears...
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#GivingTuesday: Here’s What You Can Do For Me

Working at Global Genes changed my perspective from day one. Rare disease can victimize you, make you feel helpless and hopeless. If doctors didn’t know how to treat me–who did? If pharmaceutical companies hadn’t produced a drug for me–who knew if they ever would? But Global Genes opened the curtain to a world that only...
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