Happy 100th Post to Me!
Wahoo! This blog just turned triple digits, baby. Here’s to another 100!
Since I’ve spent the last two days with my face in front of a screen typing and reading and typing and screaming at Happy that No, I’m not going to throw the damn ball, again—We’re going to talk about what the future of LetsFeelBetter.com has in store for it!
LetsFeelBetter Patient Guides
I have loved writing the Lets Feel Better Patient Guides since I started the blog. There are only a few now, for those of you who haven’t read them: link. I’m hoping to add more over the next couple of months on everything from how to use a nettipot, to how to figure out if you have a rare disease! Would love to hear some comments from readers on what sort of guides you’d like to see!
Boyfriend, Boxer, Chemist and Ritters Syndrome Patient, R.J, will be taking to my blog later this week to share his first post! I’ve been bugging him to write a post for me for weeks now and he’s finally relented.
Introducing Dr. Santa Maria
Now that we’ve finally got his website up online I can reveal the name and practice of the AMAZING concierge doctor I work with to manage my POTS and PIDD. Dr. Santa Maria is a great physician with tons of ideas on how he can help the rare community and many others like me with Postural Orthostatic Tachycardia. Right now I’m helping him get his social media off the ground, but in the next few months you can look forward to webinars, videos, and even virtual appointments for POTS patients in other states!
More on the Rare Community
Now that I’ve started work as the Managing Editor of The RARE Blog at Global Genes, I’m learning a little more every day about just how big the world of rare and genetic disease is. And it’s huge. Like, astronomical. Between the politics and policies, organizations and foundations, and patients and parents there are a million stories to be told. I can’t wait to post some blogs on how what’s going on in the rare world affects patients and why YOU should be keeping tabs.
As I’ve mentioned, in just a short two weeks I’ll be heading off to Dallas, Texas for the POTS Treatment Program. I’m nervous, excited, and ready to get started. I’ll be blogging/video blogging/twittering and facebooking the whole adventure—so for those patients who are considering flying out for the program this is your chance to get a close-up view on what the program is really like! Remember to leave a comment on this post if you have any questions about the POTS Treatment Center!
Lots of changes this year—from new jobs to (Eh-hem) new hand jewelry (?), I’m hoping to document my many adventures. Whether that’s screaming into a barf bag on a measly two-hour flight, working so intensely on my laptop that my contacts dry out, or learning that I could drink all the water in the ocean but it still wouldn’t be as hydrating as blue powerade—I hope you’ll join me for another 100 posts!