If It Makes You Happy

When Happy was a babypuppy I used to carry him around in my big fake Louie Vuitton purse with a towel on the bottom so he could curl up and fall asleep. He would rumble around in there until he would roll over backwards and fall asleep while we went around doing our errands. And…

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The Global Genes Project Makes Significant Point About Rare Disease Awareness Versus Cancer Support

The difference between being diagnosed with a rare disease and being diagnosed with breast cancer is a powerful comparison made by Nicole Boise on yesterday’s segment of Unveiling the Mystery: Rare and Genetic Diseases on Lifetime TV’s Daily Morning Talk Show: The Balancing Act. It’s so absolutely PLAIN to anyone with a rare disease, but…

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A Moment of Glamour

I kind of feel like I’ve been running in fast-forward since Thanksgiving. Between my car crash–which I thought was pretty much just a fender-bender and turned out to be a “you-need-a-new-car-completely” kind of situation, R.J non-stop working, and the multitude of family events while my sister is down–I’m pretty wiped out. Despite the craziness and…

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Dumb Ways to Die

Saw this hysterical little PSA video today for Sydney’s Metro. It discusses all the dumb way to die—like disturbing a wasps nest for no good reason or sticking a fork in the toaster.   And I started wondering…what would be some of the most embarrassing ways to die from a situation involving chronic illness? My…

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