The Four Things I Want to Remember Today

It wasn’t the greatest day. But here’s what I kept in mind during it: 1. I’m not afraid of that anymore. Two infiltrated IV’s and plenty of painful needle pricks and I was tired, but still kicking. This treatment may not always be pleasant–but it’s eased a lot of my anxiety as a patient. A…

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We’re Engaged! (Picture Post!)

We’re engaged! Okay–you already knew that. But some 8 months later–we’re finally celebrating. To kick off our big engagement celebration we had a photo session with Jack Levy of JackLevyPhotography.com. Check out some of our pictures below.   (The middle one says: “This is your last chance to run!”)     We had our session…

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“A Story Six Years in the Making” Wall Street Journal Produces Masterful Piece on the Hempel Family Saga

Reposting from www.globalgenes.org/blog With graphics unlike you’ve ever seen before, the Wall Street Journal has created a multi-chapter journey for readers to explore the world of rare disease and treatment through the Hempel family’s journey. The piece, which includes incredible photography, video, interviews, and a complete history of the life of Addi and Cassi Hempel–shows two beautiful,…

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Dear Diagnoses (For Julie Flygare’s Blog-a-Thon)

This is a letter in response to Julie Flygare’s Dear Diagnosis Blog-A-Thon. See details below! If you could go back and speak to yourself on your diagnosis day, what would you say?“Dear Diagnosis” is a Blogathon inviting all narcolepsy and chronic disease bloggers to write a letter to yourself on your diagnosis day. The rules…

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