“A Story Six Years in the Making” Wall Street Journal Produces Masterful Piece on the Hempel Family Saga

Reposting from www.globalgenes.org/blog With graphics unlike you’ve ever seen before, the Wall Street Journal has created a multi-chapter journey for readers to explore the world of rare disease and treatment through the Hempel family’s journey. The piece, which includes incredible photography, video, interviews, and a complete history of the life of Addi and Cassi Hempel–shows two beautiful,…

Read more

Dear Diagnoses (For Julie Flygare’s Blog-a-Thon)

This is a letter in response to Julie Flygare’s Dear Diagnosis Blog-A-Thon. See details below! If you could go back and speak to yourself on your diagnosis day, what would you say?“Dear Diagnosis” is a Blogathon inviting all narcolepsy and chronic disease bloggers to write a letter to yourself on your diagnosis day. The rules…

Read more