Fatigue of Fear of Flying

I may have told you this before, but I’m terrified of flying. So much so that I specifically avoid traveling and even the thought OF traveling gives me anxiety. I’m also terrible with elevators. Having active symptoms of my disease certainly doesn’t help the situation, but this anxiety is much larger than just my disease–it’s…

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I Have No Idea Who You Are.

I was in the emergency room this afternoon–not for myself–but alongside my mom for my Grandpa who had a bad reaction to a lung biopsy they’d done earlier in the week. His lung collapsed. Scary. And not to make it all about me (“but hey, when is it ever not about me?” – Piper Chapman,…

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Girl Be Thirsty…..

It is hot up in here. Florida. Summer. I’ve tried to pretend like it isn’t happening, but it is. This time of year is really a beast for me with the chronic dehydration. I’m trying to get ahead of it but that means doubling my Gatorade intake and bumping my IV’s up to twice a…

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Wedding Venues and Waffles

Summer in Florida is a whole new animal when it comes to dealing with POTS.┬áMy gatorade intake has about doubled. I think I’m a little more aware of how the heat affects my symptoms this year, and so I’m feeling a little more prepared to deal with it. I’ve also decided this week that I’m…

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