Dragging Dysautonomia Through My Twenties one Bitchy, Blunt and Belligerent Blog Post at a Time
God bless Cambia, you know? You don’t? I guess it must be new on the market. Completely unrelated to Cannabis, Cambia is a migraine medication. It comes in a small packet and it’s a flavored powder you mix with a few ounces of water. I want to kiss my pain management doctor for introducing me…
There’s a lot of things I wouldn’t dare to eat now that I’m older, wiser, and have felt the often excruciating error of my ways. Which is why I’m giving my brain some serious side-eye this evening while I desperately crave a french bread frozen pizza. I haven’t had a french bread pizza since like…
And….I feel like an asshole. And make no mistake, it’s not just a feeling. Do you remember the first time you showed up to a dinner party without bringing something–wine, a dish, flowers? And everyone else had brought some kind of hostess gift and you were like fuck am I some kind of neanderthal? Why…
Still haven’t heard back from my doctor. It’s Tuesday. I asked the office to have him call me on Friday. I sent an email on Saturday. Nada. Somewhere, out there, there’s $500 worth of shoes I could have bought with the money I was using to insure my medical care. But what of it!? I’m…
How can I put this delicately? If you try to wheel me away for an x-ray after I’ve refused three times, I will cut a bitch. I know I may not look scary laying there in that hospital bed, clutching my ribs, my face bright red, trying to unkink my IV tubing. But tonight…
Giving an update on the progress of my book deal, where I’ve been and when I’ll finally get back to blogging full time! (life with POTS, Dysautonomia, rare disease, Primary Immune Deficiency & Gastroparesis)…
Ilana Jacqueline
27-Year-Old Patient Advocate, Freelance Writer, and Managing Editor of the blog at The Global Genes Project.
The Book: Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane, Be Your Own Advocate, and Live Your Best Life by New Harbinger coming 2017.
Patient with POTS (Postural Orthostatic Tachycardia Syndrome), Dysautonomia, Hyper-Somnia (suspected Narcolepsy), Gastroparesis, and Primary Immune Deficiency Disease.
Contact: IlanaWrites(@)Gmail.com
