The Wedding: Coming Soon

Tomorrow (Saturday) night is the day I’ve long been waiting for: my wedding! The preparation for this wedding has highlighted all of the blessings in my life. My sister flew in from across the country to host my bachelorette party–and the time and effort (and stress!) she put into the celebration brought me to tears...
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#GivingTuesday: Here’s What You Can Do For Me

Working at Global Genes changed my perspective from day one. Rare disease can victimize you, make you feel helpless and hopeless. If doctors didn’t know how to treat me–who did? If pharmaceutical companies hadn’t produced a drug for me–who knew if they ever would? But Global Genes opened the curtain to a world that only...
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October Business as Usual: Spiders, Pumpkins, Pilots and Co-Pays

Boy is it easy to get lost in the waves. The past two weeks have been gastroparesis–migraines–joint pain–gastroparesis–migraines. Antibiotics. Scans and blood tests. Medication. I realized I wasn’t posting because, frankly, I didn’t think it was that important. No, not important. Just not different. I think the only thing new/different about this wave is that...
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