But…Like…What Do You DO For a Living?

I’m recovering from throwing the season’s wildest four-year-old poodle’s birthday party. It’s been a hard week trying to meet his expectations and surpass his hopes–but after twelve orange tennis balls, a granola cake, and the help of a few drunk friends: we made the impossible possible.

Don't look at me like that. I live in the Palm Beaches. Everyone does shit like this. ....right?

Don’t look at me like that. I live in the Palm Beaches. Everyone does shit like this. ….right?

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Okay, maybe the six foot high scene setters were a little overkill. But until I have kids, it’s shit like this that sustains me. It helps to get my ovaries to sit down and shut up. Take note, Octomom.

And one might ask–how does a girl who sits at home in her fiance’s Batman pajamas afford such extravagant affairs for her spoiled rotten pup?

Well, as much as I love blogging here on my own personal site-about all of the COMPLETELY SANE and NOT UNUSUAL AT ALL things that I do for myself and others…My blog doesn’t make up the bulk of my living. Which would make me really sad…if what I was doing as a career wasn’t so incredibly personal and satisfying.

I’ve had a few newbies reading the blog lately and the question has been asked ¬†(generally stuck awkwardly in-between compliments): what do I actually do?

Besides spending half my life tracking down cool .gifs, here’s how I spend some of my working hours…

Global Genes

 

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I started working for Global Genes about three years ago. They are an incredible–and an incredibly necessary non-profit organization who exist to ease the challenges of living with a rare disease. (I’m obviously in the right place.)

As part of the team, I get to help write up toolkits, network with other advocates to involve them in major projects like our annual Patient Advocacy Summit, and serve as the Managing Editor of our blog, The RARE Daily. Even though we work with the harsh reality of what patients are going through on a daily basis–from financial and insurance struggles to symptoms that make work and school a near impossibility–I love being able to talk to patients on the phone and be the first person they don’t know to ever say, “Oh that disease? I know all about that!”

I work from home here in Florida while the majority of the team works from California. I love the staff of women I get to work with every day who are so talented and invested in what we do.

I know, I’m gushing. Here, just see for yourself.

IG LIVING Magazine

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For over a year now, IG Living Magazine–your source for news on immune deficiency and other diseases that benefit from Immunoglobulin treatments, has hosted me as a columnist. I give advice for twenty-somethings going through treatment on how to handle the curveballs that ongoing treatment can provide.

Freelance Corporate Copy

Do you ever forget to bring your iPad into the bathroom and end up reading the back of shampoo bottles on your toilet?

Girl, that is all me.

Okay, but you gotta pay the rent first.

Okay, but you gotta pay the rent first.

I’ve written the product description of more hair care, perfume, baby and (cringe) menstrual products than I’ve ever really wanted to admit. Copywork is often the bread and butter of a professional writer’s work. Sometimes I work directly with companies who are launching a new line of products–sometimes I work with their PR or branding agency. This work is done almost entirely from home (even though there are some local agencies I’ve worked for.) I prefer to thesaurus.com creatively brainstorm¬†in the comfort of my one bedroom closet of an apartment¬†ample abode.

In the past I’ve done website content, advertorial content, packaging copy, even directions for pregnancy tests. I actually love the bizarre world of corporate copywriting. It’s a challenge I don’t get with my other jobs since the content I write about is already interesting. With this I sometimes get handed a box of panty liners and am expected to write a description so inarguably awesome that people want to fight over the last box in CVS.

(But sure, sometimes it’s just Step 1: Pee on the stick.)

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Books

Even though Outsmarting Chronic Illness is like, my .doc lovechild, it’s not the first book I’ve ever written. It’s just the first one I’m not embarrassed to admit. It’s also the only really recent one I’ve written. One of my first jobs out of high school was ghost writing a book in thirty days. It was an intense (and intensely boring) project that was miles and mountains beneath my pay grade, but was an invaluable experience because it taught me how to write quickly. Even though that book didn’t even make it anywhere near mass-market distribution, it was a good “I did it once, I can do it again!” memory for when I bone-headedly committed to my publishing company that I could write a full book in three months.

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I panicked the entire way through the process, worrying over whether or not I’d finish my chapters in time. Losing my shit every time someone distracted me when I was in the middle of a writing session. (This was also during that period of skull-cramping migraines that made me just a little more likely to fly off the handle if I couldn’t find the pair of leggings I was looking for.) Whatever though, because I got it in two weeks before deadline.

all week

And have no fears, I am still aggressively working on trying to get this book on the shelves in 2015.

I know some people just give up on their dreams when they hit a road block–they lose that inner confidence that tells them they can do it! They can succeed! But me?

creative

 

Amen, Kanye. Amen.

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