Catching Up With the RARE Daily

So this is kind of my new thing. In the past I’ve loved doing video blogs an will continue to do them about all of the inane experiences I have with my own personal medical odyssey. But Global Genes has given me the opportunity to host a weekly catch-up video for The RARE Daily. So here we go.

How are researchers battling Ebola with Niemann Pick Type C? What did Honda do to enrage the Narcolepsy community? And how can you help a family with Pompe? All these stories and more in this week’s episode of Catching Up with the RARE Daily.

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31 thoughts on “Catching Up With the RARE Daily

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