Dragging Dysautonomia Through My Twenties one Bitchy, Blunt and Belligerent Blog Post at a Time
Advice on chronic illness
Read here or in this month’s issue of IGLiving! So it’s that time again. You’re being wheeled into a hospital room. You have no idea how long you’ll be here for. It could be a night. It could be a month. With immune deficiency it’s a guessing game about how long an infection will take…
For the last eight months, mainly since my butchered port surgery people have asked me: Why don’t you sue? I have to laugh a little because that phrase always brings me back to elementary school. Growing up in a town like Boca Raton it was not uncommon to hear the phrase “Yeah, well, I’m gonna…
For me, having an older sister means always having someone to turn to for advice. Even though she lives on the other side of the country, we talk every day and we always ask each other’s opinions on everything from our marriages to marketing to things we MUST buy on Amazon. My sister, Sammy, is…
Pompano Beach, FL— One in every ten Americans has a rare disease. It’s a startling statistic, but it’s one that will help even the healthiest of individuals realize how random the genetic lottery really is. This is also why the patients of the rare disease community have chosen the rarest day of the year to spread awareness. On the…
After reading about all my misadventures here, you might be thinking: how does this girl pay her rent? The rumors that I’m a disabled stripper or that R.J is secretly the inventor of Vapor Rub aside, I do actually have a day job. I’m a gymnast! No buyers? Okay. Okay. I’m a work-from-home editor and…
So let’s say you did something stupid. Maybe you ate calamari last night. A lot of calamari. Nice move, genius. Now it’s four in the morning and you’re hanging out on your bathroom floor wondering how in the https://www.acheterviagrafr24.com/prix-du-viagra-en-pharmacie/ hell you’re going to stay focused during your 8 AM conference call. But you were smart…
I’ve often found myself stranded at the mall or the grocery store or the infusion center and have had to call my mom or husband to pick me up. We don’t really have a robust Uber community in Boca Raton yet. But I should know better. There are certainly a handful of times when your…
The first time I had to go under anesthesia, I cried and cried until the lights went out. I was so afraid that I’d feel everything! But as my Grandpa told me: it will be the best sleep you ever have. And it was! But waking up from anesthesia? Well, that’s not always the easiest…
I’m almost out of the woods at this point. I had a follow-up appointment with my infectious disease doctor. A part of me was hoping she’d tell me that my wound had healed enough to put in the new port…but I knew that was unlikely and she gave me a flat out “no” the second…
My grocery bill is astronomical. Like if you saw how many times I went to Publix and how much I spent each time I went you would think: That girl has got to be morbidly, morbidly obese. No question. But the truth is that my diet is just very unpredictable. It’s why R.J and I…
Ilana Jacqueline
27-Year-Old Patient Advocate, Freelance Writer, and Marketing Consultant. Check out IlanaJacqueline.com for more info on working together.
The Book: Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane, Be Your Own Advocate, and Live Your Best Life by New Harbinger coming 2017.
Patient with POTS (Postural Orthostatic Tachycardia Syndrome), Dysautonomia, Hyper-Somnia (suspected Narcolepsy), Gastroparesis, and Primary Immune Deficiency Disease.
Contact: IlanaWrites(@)Gmail.com
