If You Were a Pillow I’d be All Over You by Now

angry1Continuing on… Today my fatigue got progressively worse. Blood pressure sank. Pulse raced. Blacked out every time I stood up. I had my mom take me to Dr. Santa Maria to get checked out. We’ve been talking about changing my beta blocker for a while now (I often have these periods where they completely lose their effectiveness) and the side-effects from them aren’t exactly a party either. But now–a week before our vacation–is no time to mess with my heart medication.

Because messing with my heart medication could cause a myriad of crap including: dizziness, vertigo, low blood pressure, tachycardia, fatigue, nausea…

However NOT doing anything about my beta blocker could cause: dizziness, vertigo, low blood pressure, tachycardia, fatigue, nausea…

So. There’s that.

After some theorizing, comparing and contrasting–thinking back on what has and totally hasn’t worked–we came to the topic of narcolepsy. I mean, it’s pretty familiar to what’s happening with me. I get incredibly fatigued with almost no notice and have to fall asleep wherever I am,¬†immediately.

I know I'm reusing this one, but god damn--it just applies, you know?

I know I’m reusing this one, but god damn–it just applies, you know?

So we started discussing some narcolepsy medication like Provigil. It might be something I try when I get back from St. Augustine. For now we’re trying something else. Low-dose…something. Crap, I’m sorry this doesn’t help anyone but have I mentioned I’ve got a little bit of brain fog going on? It has to be made at a compounding pharmacy so I won’t be able to start it until tomorrow night. But that’s okay, all I have to do is write two blogs, about 50 follow up emails, prepare interview questions for that celeb mom, and then find a way up my staircase without dying.

So that should be doable.

Or I could just fall asleep right here on the couch.





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2 thoughts on “If You Were a Pillow I’d be All Over You by Now

  1. Mary Ann T

    As someone with the same diagnoses (plus a few more), I highly recommend Provigil. I had the narcolepsy symptoms too – would fall asleep while driving, pitch forward into my computer while typing. I slept anywhere from 4-8 hours in the daytime. They tested me for sleep apnea and tried CPAP but that had no effect whatsoever. I can no longer tolerate beta blockers at all due to the fatigue. I have SVT so if I have an episode, I take a beta blocker. If that doesn’t work, then I’m off to the ER. Hope the Provigil works for you. It is a lifesaver for me. Hoping eventually that my daughter (similar problems) will be able to use it so she can eventually leave the house!

  2. Jon, the mechanism for Modafinil is very well known. Modafinil caeuss an increase in histamine release in the anterior hypothalamus and pedunculopontine tegmental nucleus. The effect of modafinil are known to be synergistic with H3 histamine receptor agonists and are blocked by histamine receptor antagonists .Modafinil does not act directly upon dopamine receptors but increases activation of the prefrontal cortex indirectly and therefore does not have potential for abuse by recreational drug users. In research studies, ex-meth users have complained that they were unable to obtain a high by insufflating modafinil. Modafinil is therefore thought to have an extremely low recreational abuse potential.Modafinil has no known liver toxicity. However, other drugs such as alcohol are known to be metabolized into chemicals such as acetaldehyde which are known to cause liver damage.Modafinil is extremely safe and is one of the most widely used performance enhancing drugs used by medical students.

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