Is There a Google Maps for Chronic Illness Management?

tumblr_m69j8q7oVE1r79k32The last two weeks I’ve really been struggling to get my shit together. Between the flea infestation and massive fatigue from what I think is a sinus infection–I just can’t seem to get a grip.

When I’m feeling okay, my life is very manageable.

I do my work. I take care of my dog. I have a relationship. I pay my bills. The end.

I just need help. I need help staying awake. I need help scheduling my specialist appointments. I need help figuring out if I should be getting a C-T Scan or I should be continuing antibiotics even though that means we can’t do a culture now to see if I actually have an infection–or if I’m just getting really bad TMJ?

And if I can’t get help with that..

Then I need help living my life. Grocery shopping and cleaning and walking the dog. Oh–and then I’m going to need help not feeling the worlds guiltiest fiance/daughter/friend who will barely have energy to direct the show, let alone contribute to it.

And honestly? It’s not a “pity thing.” I’t’s not a “I feel bad for myself because I’m sick and it’s hard thing.” It’s a “trying to take responsibility for my life with chronic illness and having no earthly idea HOW I’m supposed to organize this in a way that works with the resources I have, doesn’t make me broke, and stays a step ahead of my immunodeficiency thing.”

So…fuck it. I’m eating chicken salad and taking a nap. Happy, you handle this!

"You can't afford me."

“You can’t afford me.”

 

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