Ladies and Gentlemen, My Mother…

 

My mother was honored earlier last month for her work at o2Media and the creation of the show Behind the Mystery: Rare and Genetic. The show has been a great thing for the rare community and had many patients, advocates and pharmaceutical companies speak about the hunt for cures for rare and genetic diseases. My mom was awarded a Champion of Hope award from The Global Genes Project for her work. While she wasn’t able to come out to California this year to accept it, her boss did, and read a few words she prepared.

Thanks to the Global Genes Project for recognizing her awesomeness–and thanks to my mom for just being that awesome.

2013 Gala: Carri Levy, presented by David Ewing Duncan from Global Genes | RARE Project on Vimeo.

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