Makes a Dragon Want to Retire, Man.

I’m pretty proud of some of the changes I’ve been able to make since the surgery. I’ve weaned off of many of my medications. I’m now off Prilosec, Pepcid, Percocet, and Allegra completely. I had been taking 75mg of Desipramene (and had been on the medication in an increasing dosage for ten years.) Tonight I’m down to 55mg and slowly and safely planning on weaning off of it completely.

Kat Dennings would definitely be playing me in the "Ilana Jacqueline Story" made for TV movie.

Kat Dennings would definitely be playing me in the “Ilana Jacqueline Story” made for TV movie.

I’ve started thinking a lot about what the high-risk OBGYN told me a few months ago, how I would need two years at least before I’d be ready to get pregnant–and even though I am NOT ready to get pregnant right now, I am looking towards the future. And I know that I can’t see having kids and having so many medications in my system.

There are still a few things I’m struggling with. The first is staying hydrated. This is still such a huge struggle for me. Especially now that I am really moving around during the day and trying to ride my recumbent bike. Just forty-five minutes on the bike and I’ve lost my entire IV for the week. But I’m not worried yet. I’ve spoken with my doctor, my insurance company and my infusion nurses. I finally found a way to not GET a nurse to give me my infusions but to TEACH me how to infuse myself. This way I can exercise as often as I want–and then give myself the lost hydration right afterwards. Right now I’m only scheduled for one infusion a week on Tuesdays, and by Saturday I’m so strung out from dehydration I’ve had to really budget my energy until the next session.

I can't remember whose blog I saw this on, but it made me laugh pretty hard. Mostly about how I think a shopping trip to Marshall's is considered "getting off my ass"

I can’t remember whose blog I saw this on, but it made me laugh pretty hard. Mostly about how I think a shopping trip to Marshall’s is considered “getting off my ass”

Getting off all the acid-reducing medication (and a huge shocker here, I know) resulted in me having some serious GERD over the past few days. I’ve been taking some natural supplements for this–Slippery Elm and Papaya extract. It’s….kind of helping? I was also drinking two Bio-K’s a day last week but they’re crazy expensive. (I do think they make a difference though so I’m going to stock up tomorrow again and just bite the bullet on it.)

My diet has changed so much, so again, I’m not surprised. I’ve added a lot of new foods to my regular meals– spinach, sweet potatoes, lots of grapes, bananas, and strawberries. I’m also still drinking a green drink (Basically just powdered dehydrated every green vegetable known to man) once a day. Between that and the new vitamins (Vit D, Magnesium, and Potassium) I’m feeling a lot stronger.

Still feel like I’m constantly on the verge of vomiting fire–but stronger nonetheless.



On pins and needles every day waiting to hear back about my book. Don’t want to get my hopes up too high –but I did get an extremely unexpected and incredibly fortunate –Hmm..what to call it? Lead? Champion? Let’s just call it incredibly fortunate. Getting a really clear universe signal saying, “Good things come to those who wait.”

Thinking there must be a reason why everything moves at the pace it does.



but also:




  • Ha! Just the title of this post made my day. Thanks for that! 🙂

    And keep fighting the good fight – you’re doing a great job of taking care of yourself!

  • LOVE the title and the two quotes at the end. I have a rare kidney disease and struggle with dehydration, too. But just like you, I’m finding ways to work around that trip to the hospital. Keep on fighting!