Full Balancing Act Lifetime TV Segment Now Online!

  Very grateful to have been a guest on The Balancing Act for a second time to discuss World Rare Disease Day this https://www.viagrasansordonnancefr.com/viagra-cialis/ year. Also got to talk a little bit about my book and what you can expect to read. Comments commentsPowered by Facebook Comments…

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The Headache Hat: My New Favorite Thing

I’m on a lot of painkillers right now, but I’m pretty sure I just discovered my new favorite thing. It’s called a Headache Hat. And it’s freaking genius. In fact, I’m not sure why this isn’t a mass-produced product in every CVS in the country. It’s so simple, yet so effective and solves the frustrating…

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Are You Undiagnosed? Share Your Story

It took 19 years for doctors to finally diagnose me with a rare immune deficiency disease. The total number of undiagnosed patients is unknown but considered to be vast. To provide some perspective on this epidemic, consider that it takes an average of 7.6 years in the United States to uncover a rare disease diagnosis. Worldwide there…

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The Determined Weeper

God, this has just been a week full of weeping. Like full on, mascara running, call my mom ten times more than usual per day, terrify my husband weeping. And the funniest part of it all? Nothing is outrageously wrong. No terrible thing has happened in my life. Nobody died. Nobody called me a name…

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The Balancing Act’s Ongoing “Behind the Mystery: Rare and Genetic Diseases” Series Features Rare Disease Author Ilana Jacqueline

Pompano Beach, FL— One in every ten Americans has a rare disease.  It’s a startling statistic, but it’s one that will help even the healthiest of individuals realize how random the genetic lottery really is. This is also why the patients of the rare disease community have chosen the rarest day of the year to spread awareness. On the…

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Enter to Win! Pill Case Giveaway!

I’m a good person, but sometimes I make bad choices. Like earlier last week when I decided I would dye my hair using boxed dye from CVS in a dark brown when I have never really dyed my hair by myself. I’ve also spent the last four years lightening up my hair with blonde highlights…

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But Let’s Talk About Me

  As you might be able to tell, I’ve been doing a lot of blog maintenance this month. I’d kind of gotten out of the habit of including my readers in my story. So I’m determined to bring back advice articles, reviews and some solid giveaways!!! I’ve got so much set up for the next…

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If You Have a Rare Disease You Should Tell Me About It!

  I need to know these things. Well, I want to know these things. Meeting and listening to the stories of rare disease patients is my job, but more importantly it’s my passion and the fact that I get to help patients share their stories as my job is just…awesome. So here’s how it works: 1)…

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