Projects Are Happening

I’ve had kind of a whirlwind two weeks. A few things I wanted to get out: 1. I heard you, all of you. Clearly there’s a HUGE issue with chronic illness patients finding local support. I’m working on developing a project that’s going to fix that problem. For updates on that, check out the new...
Read more

Lego—and Let It Go!

I’ve worried you so much, I’m sorry. It’s not so bad. Okay. I ate four garlic rolls and a bowl of pasta twice the size of my head while sobbing over the Disney Channel’s showing of Bolt last night, but COME ON IT’S A SAD MOVIE. The dog gets lost. From its person.  Like, I...
Read more

#GivingTuesday: Here’s What You Can Do For Me

Working at Global Genes changed my perspective from day one. Rare disease can victimize you, make you feel helpless and hopeless. If doctors didn’t know how to treat me–who did? If pharmaceutical companies hadn’t produced a drug for me–who knew if they ever would? But Global Genes opened the curtain to a world that only...
Read more