Dragging Dysautonomia Through My Twenties one Bitchy, Blunt and Belligerent Blog Post at a Time
Wow. Wow. Wow. To say my last post got a little traction is an understatement. Boy, I ask for help and you guys just turned out of the woodwork. My video got responses from all over the WORLD. I got Facebook messages, emails, comments, hundreds of shares and likes. And that was just from strangers…
Wow. I managed to capture the seven minutes worth of the most pathetic moments of my entire life on camera. This was like watching a pelican trying to swallow several crows and then almost choking to death on them. Or like someone with a chronic illness realizing that their world has become incredibly small and…
(Warning: a very large part of me feels like this post is cringeworthy but probably something EVERYONE with chronic illness goes through.) I remember my 21st birthday, sitting on my couch with my mom, eating my cake and hysterically crying. I was feeling so alone. It was a time period where I had no friends,…
1. I threatened to steal someone’s dog. So the other day I was walking Happy and like many a time before, a dog came running out of nowhere and started chasing Happy. Thankfully, unlike many of the other dogs in my neighborhood–this one was the size of a Pomeranian. She may have even had…
This was the Friday before last at the T-Mobile store, about an hour before I ended up in the emergency room. This, as my mother documented, is what I look like when I’m 100% out of spoons. This is the second weekend in a row that I’ve spent in the hospital. And I have…
Making and breaking plans is a common theme for people with chronic illness. It’s something I’ve lost a lot of friendships over and still haven’t found a great way to handle. The way I’ve seen it you only have a few choices: Don’t make plans. Choosing to just NOT make plans with friends because you’re afraid you…
Ilana Jacqueline
27-Year-Old Patient Advocate, Freelance Writer, and Managing Editor of the blog at The Global Genes Project.
The Book: Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane, Be Your Own Advocate, and Live Your Best Life by New Harbinger coming 2017.
Patient with POTS (Postural Orthostatic Tachycardia Syndrome), Dysautonomia, Hyper-Somnia (suspected Narcolepsy), Gastroparesis, and Primary Immune Deficiency Disease.
Contact: IlanaWrites(@)Gmail.com
