Getting Personal at Global Genes

One of the main goals when I signed on board with Global Genes was to give a platform to the many voices of knowledgeable and weathered patients, parents and advocates in the rare and  genetic disease community. I wanted to be able to have writers share real stories, tips, and advice. I’m so happy to say that...
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The Global Genes Project Makes Significant Point About Rare Disease Awareness Versus Cancer Support

The difference between being diagnosed with a rare disease and being diagnosed with breast cancer is a powerful comparison made by Nicole Boise on yesterday’s segment of Unveiling the Mystery: Rare and Genetic Diseases on Lifetime TV’s Daily Morning Talk Show: The Balancing Act. It’s so absolutely PLAIN to anyone with a rare disease, but...
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