Getting Personal at Global Genes

One of the main goals when I signed on board with Global Genes was to give a platform to the many voices of knowledgeable and weathered patients, parents and advocates in the rare and  genetic disease community. I wanted to be able to have writers share real stories, tips, and advice. I’m so happy to say that…

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Juice, Joints and Genes: Where Did I Go?

  I’m pretty sure I’m the only 23-year-old in the cardiac rehab gym, probably just as sure as I’m the only 23-year-old buying a vibrator…for my arthritic knees. You can take that to mean that I’m still working out, which is working out—except for the backlash of joint pain. I’ve been drinking this juice drink…

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The Global Genes Project Makes Significant Point About Rare Disease Awareness Versus Cancer Support

The difference between being diagnosed with a rare disease and being diagnosed with breast cancer is a powerful comparison made by Nicole Boise on yesterday’s segment of Unveiling the Mystery: Rare and Genetic Diseases on Lifetime TV’s Daily Morning Talk Show: The Balancing Act. It’s so absolutely PLAIN to anyone with a rare disease, but…

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