Risk.

For days I’ve been trying to wrap my brain around what happened. How did I go from having a functional flare to immobile in my hospital bed after weeks and weeks of barely seeing my own bedroom? How did I go from being able to see my body so abstractly to feeling like I was…

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Hospital Part II: Waiting for More Tests, Not Coping

After my week long hospital stay in Orlando I managed to stay out of the hospital for a whole three days before checking back into my local ER with excruciating abdominal pain.  I was admitted for a few more days and was able to get the Gastric Emptying Study completed while I was there. I…

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Hospital Update Part 2: The Specialist on the Phone

Is this the desert? Is that a vending machine full of Propel Sport Zero in the distance…? No. Still in the hospital draining the last few drops of my FIRST bag of saline and not feeling any more hydrated. That could be because I can usually suck one of these bags dry with my miraculous…

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First Hospital Update (And Hopefully the Last)

Checked into the hospital this afternoon. After three days of consecutive IV’s with minimal results, we really didn’t know what else to do. I’m sleeping about twice as much during the day than I was a week ago, and I’m waking up with really low blood pressure–today was 73/40 and my HR was 124. (Keep…

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Six Nurses Who’ve Annoyed the Shit Out of Me

We’ve all had them–changing our IV’s, bringing our meds, taking our blood pressure. Sometimes the perfunctory duties of being a nurse can wash away a medical professional personality. But other times, their true thoughts and feeling shine through–and like a beacon in the cold dark night, they light up the painful nerves in your brain…

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The Six Stages of Hospitalization and Chronic Illness

Stage One: This is Great, I’m Too Young to Wear a Bra—What Do I Know About Life? The first time I was admitted to the hospital, I was seven-years-old. I had pneumonia, my lung had nearly collapsed, and I was on cocktail of antibiotics that had me projectile vomiting all over myself. It was pretty…

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