What Do You Think This Is? A Joke!?

I’ve been speaking with a new company about my book. (Check yourself, Laquisha, it’s very preliminary stuff.) We were getting into more of the details and answering questions like who will this book appeal to? Who will this not appeal to? What kind of patient reads a book like this? And it got me thinking…

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My Plan Is Not Jello

When I said I needed some time to regroup, I didn’t mean I was going to fall off the face of the earth–but I guess that happens sometimes when you’re trying to put together a plan. And oh boy, has this been a solid few weeks of planning. Here’s something I didn’t mention in my…

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Risk.

For days I’ve been trying to wrap my brain around what happened. How did I go from having a functional flare to immobile in my hospital bed after weeks and weeks of barely seeing my own bedroom? How did I go from being able to see my body so abstractly to feeling like I was…

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I Know I’m Lucky.

Two months of migraines. Two years of learning to cope with this disease. Too many ER trips to count–but if you think I’m over here crying in a corner, you couldn’t be more wrong. Over the past few years a lot of things have been checked off my bucket list. Some that I prayed for…

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Catching a Break

Yesterday, after a fruitless alternative healing session I got in my car and drove back to my apartment. A client, for the first time since I was fourteen, completely bailed out of paying me for a month’s work. I was hoping that when I got home there’d at least be my regular paycheck in the…

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What is Different About Now?

So this week, as my doctor and I are mid-flight with no directing cardiologist over at air traffic control, I’ve been thinking about things. Here I am trying the same pills that didn’t work a year ago, struggling to find a medication that controls my POTS symptoms in a kind of balance that doesn’t make…

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