Just Yell “PLOT TWIST” and Move On

It is four AM. I feel as though I wrapped duct tape around my abdomen five hours ago. I think I did the pharmacological equivalent–downing a percocet by mouth and then flushing a shot of torridol and zofran through my port. One does not just “eat rice and shredded beef without consequences” when they haven’t…

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Reset: How to Aggravate a Migraine

This weekend R.J and I had tickets to a local food festival. We love food festivals. But if we’re going to be completely honest–we love food festivals in winter. At night–when the Florida heat somewhat abates and you can actually walk through the streets without feeling like you are both melting and suffocating at the…

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The Port, The Pity and the Perfect Wedding Dress

I found my wedding dress this week. But let’s not overexcite ourselves, I’ve found three dresses–and one I actually took home from Macy’s. This one: But I returned it. And now I’m sure I found the one. Like put-down-the-deposit, buy-a-veil-off-of-Ali-Express -sure. (Because who in their right mind pays $300 for a piece of gauze and…

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Falling Short: Veins and Port

I’m having a major 404 with my port, pretty much since the minute they put it in. Besides the nerve pain that comes with having a surprise chest tube after having a port implanted earlier in the day–comes the obnoxious reality that the port only really works when it feels like it. I’m supposed to…

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Risk.

For days I’ve been trying to wrap my brain around what happened. How did I go from having a functional flare to immobile in my hospital bed after weeks and weeks of barely seeing my own bedroom? How did I go from being able to see my body so abstractly to feeling like I was…

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Nurses Just Lie About Things

Another night, another ER visit. Last night we headed over around 5:00pm. Waited in the waiting room for a half an hour before being moved to the very end of the emergency room. Patients were being treated in the hallways 🙁 I just needed one liter of an IV and a Bentyl shot to alleviate…

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