Fatigue of Fear of Flying

I may have told you this before, but I’m terrified of flying. So much so that I specifically avoid traveling and even the thought OF traveling gives me anxiety. I’m also terrible with elevators. Having active symptoms of my disease certainly doesn’t help the situation, but this anxiety is much larger than just my disease–it’s...
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It’s a Small World After All

I should be writing this post from California, but I’m not. This week there were so many reasons for me to be in California. The first started on Friday morning–when Global Genes started their Patient Advocacy Summit. I watched it on my phone on the way to an echocardiogram at the hospital. After they’d strapped...
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