Do You Work?

I’m suddenly feeling like all of my pre-engagement creeping on The Knot and Pinterest have me vastly under prepared to be a bride. I know R.J and I won’t be getting married for a good long while–which was discussed at length prior to getting engaged. There’s really no rush so long as we both can get insurance…

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Getting Personal at Global Genes

One of the main goals when I signed on board with Global Genes was to give a platform to the many voices of knowledgeable and weathered patients, parents and advocates in the rare and  genetic disease community. I wanted to be able to have writers share real stories, tips, and advice. I’m so happy to say that…

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The POTS Treatment Center Trip: Post #6 Progress, Prenatal Vitamins, & Evening Primrose

The last two days have thankfully been much better. I’m starting to see an improvement and that’s pretty exciting.  I had a nervous breakdown in Dr. K’s office yesterday morning about the stress of travelling and being in the hospital—and then we actually started working with the program (the computer program) and I started to…

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