Do You Work?

I’m suddenly feeling like all of my pre-engagement creeping on The Knot and Pinterest have me vastly under prepared to be a bride. I know R.J and I won’t be getting married for a good long while–which was discussed at length prior to getting engaged. There’s really no rush so long as we both can get insurance…

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Getting Personal at Global Genes

One of the main goals when I signed on board with Global Genes was to give a platform to the many voices of knowledgeable and weathered patients, parents and advocates in the rare and  genetic disease community. I wanted to be able to have writers share real stories, tips, and advice. I’m so happy to say that…

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I’ve Been Busy, Just Not Here!

Remember that whole me-being-a-freelance-writer-thing? Yeah. About that….   The Floor Vanity: Because You Can’t Afford A Fancy Piece Of Furniture To Apply Your $5 Concealer How to trick out that little space on the ground where you do your makeup. Read it at xoVain.com!   Teaching a Child with Rare Disease to Cope: Tips for…

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