It doesn’t matter if I’m on the couch doing a conference call or running errands or cleaning the house—if it’s 3:30 I’m sitting down wherever I am and I’m falling asleep.
It’s like a very predictable narcolepsy.
Which is actually great, considering that since my diagnosis I’ve been so fatigued I would sometimes sleep 18 hours a day and still feel groggy. Now I can go to the gym in the morning, and out with my sister in the afternoon, invoice my clients on schedule–and then pass out for two or three hours before getting up and going out again.
It’s been a hectic past couple of days. My sister is in town and we’re having a dramatic crisis over our cars. See, since I got in my accident in November I’ve been driving my sister’s old car while she’s been traveling. We decided that my sister would get my mom’s old car since my mom was getting a new one. Sounds great, right? It worked out perfectly–everyone got the new car that they needed. And I didn’t even have any hard feelings about getting the old Solara while my sister got a practically new Nissan–why? Because I literally drive a maximum of five miles a day while she drags her band around the whole country. It just makes more sense.
So right, the plan sounded like a solid one.
Except for pretty much everything in the paperwork.
See my sister is traveling, so technically she has no residence, but she intends to move to another state outside of Florida. So she wanted the car registered there. Sure, okay. Except that she’s IN Florida and legally needs to register it here–but FL car insurance is outrageously expensive and the state that she’s headed to is much cheaper. Except she had all the wrong paperwork, and my mom accidently locked the paperwork for my car in her office before she left on a week long trip to California–and the plates for my car? They were at an autoshop in Hollywood and I won’t even be able to get them until Wednesday.
For me: I could basically give a crap. I’m driving my sister’s old car right now still, and as soon as I get my plates I can put them on hers or my mom’s old one if needed. For my sister it’s a bit more miserable. She’s been on the phone with two different state DMV’s for the last three days trying to figure it out and it’s just a mess….
So I may actually end up getting the Nissan. Which, to all of us, seems like a major waste considering how little I actually drive. Looks like R.J and I should start planning a roadtrip to put that car to good use!
…while my sister has to squish her entire band, their instruments and all her worldly possessions in her old car.
I also had a bit of a debacle with the pharmacy over the weekend. My doctor ordered some vials of Hylenex that we were going to test out. I found this drug a while back and thought it might just be the solution for my dehydration issues. Its supposed to permeate soft tissue to allow for better absorption of fluids. Meaning that I could try doing Sub-Q fluids after the shot and I might have a better chance of absobing it.
So I called my insurance company and they told me I could pick it up from any old pharamacy. Okay. Great. Had my doctor call it into a Target, but when I went to pick it up my insurance hadn’t covered it. Then the insurance said that the doctor needed to order it–but wait, my doctor isn’t on the insurance? Guess he won’t get reimbursed for it then…
Back to the office this morning to get an IV and we talked about it. He’d done some more research and wasn’t too enthused about the idea of putting me on it anymore. It might work, but it also might seriously screw up my skin. I’m prone to kelloid scarring (raised scars) so any medication that messes with the permability of my skin might really wreck it.
So we’re putting that on the backburner.
However we did try something new this morning! Instead of using a regular butterfly needle, we used one with plastic tubing. We got blood everywhere, but eventually we got it in and it worked like a charm. I got half the bag in my arm in like ten minutes. It was incredible, I’ve never seen it go so fast! We slowed it down after that just in case I popped the vein, but it was still pretty amazing!
After sitting with a cold IV for (almost less than an hour!) I went to pick up Happy from my mom’s house and got to frolic with him in the backyard for a few minutes:
Now I’m back to work and trying to reschedule my cardiac rehab appt for early tomorrow morning since I have a new client meeting at my usual time…I’m actually thinking of joining R.J’s gym near the house. Sometimes I think it would be easier to just be able to work in work outs in my own time…
And for another sprinkling of hope–have you all checked out the latest testimonial video from the POTS Treatment Center? Don’t forget to ask me your questions for the staff in the entry below!
Powered by Facebook Comments