And the Winner Is….

Oh my god, Florida is a hot mess right now. The whole country is a hot mess right now actually. But more specifically, Florida is literally a HOT mess. As in 9,000 degrees of motherfucking sunshine in my face. Get out of here with that UV.  I don’t need that. Nobody needs that. Urgh. Okay…

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Getting Personal at Global Genes

One of the main goals when I signed on board with Global Genes was to give a platform to the many voices of knowledgeable and weathered patients, parents and advocates in the rare and  genetic disease community. I wanted to be able to have writers share real stories, tips, and advice. I’m so happy to say that…

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Am I Projecting? My Dog, Exorcist Style.

It’s been a Happy day. And by “Happy” I mean my poodle. The one who projectile vomited exorcist style all over my couch yesterday morning. My poor baby boy. He was sick all weekend. It started on Friday night just as R.J and I were arguing over where we should go to dinner. Happy was…

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