Dragging Dysautonomia Through My Twenties one Bitchy, Blunt and Belligerent Blog Post at a Time
I’m hitting the wall–but I’ve been hitting the wall for some time now. I have tried every preventative drug and treatment for migraines–except brain surgery. And I’m not even sure that’s a thing. And I’m definitely sure I wouldn’t do it, even if it was. I had Botox injections for nine months. Today my doctor’s…
Private schools. Sushi restaurants on every corner. Old people. These are the things that Boca Raton, my hometown, is known for. Also, I would like to make the comparison known that a bathroom in Boca Raton is, on average, about 6 times larger than a bathroom anywhere in New York. (Maybe it’s because there are…
When it comes to new/unusual treatments, I’ve had the door shut in my face many, many times. Like enough times to know at this point that there is literally nothing in this world that I will NOT try to get if I think it can improve my quality of life. But first I’ll get these…
For the last week I’ve been battling really awful stomach cramps. This is not a new symptom at all. It’s a very common one. What’s new is that that none of my rescue medications are really working to resolve it. It’s kind of like when you start laughing and then you can’t stop and you…
It’s been a long while since I did a video update–so here we go! …
It is four AM. I feel as though I wrapped duct tape around my abdomen five hours ago. I think I did the pharmacological equivalent–downing a percocet by mouth and then flushing a shot of torridol and zofran through my port. One does not just “eat rice and shredded beef without consequences” when they haven’t…
This weekend R.J and I had tickets to a local food festival. We love food festivals. But if we’re going to be completely honest–we love food festivals in winter. At night–when the Florida heat somewhat abates and you can actually walk through the streets without feeling like you are both melting and suffocating at the…
Ilana Jacqueline
27-Year-Old Patient Advocate, Freelance Writer, and Managing Editor of the blog at The Global Genes Project.
The Book: Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane, Be Your Own Advocate, and Live Your Best Life by New Harbinger coming 2017.
Patient with POTS (Postural Orthostatic Tachycardia Syndrome), Dysautonomia, Hyper-Somnia (suspected Narcolepsy), Gastroparesis, and Primary Immune Deficiency Disease.
Contact: IlanaWrites(@)Gmail.com
