More on me? Aw shucks. I couldn’t possibly…

Feel free to comment below with relevant links for rare and chronic illness! I’ve collected a smattering of resources I hope you’ll find useful, but I’m only one person and there is so much internet. And it’s not like I don’t WANT to share your blog. It’s not like I looked at your link and thought, “NO. Not meeting my standards. Banished.” I was probably just Pinteresting when I was supposed to be researching. So don’t be shy now, ya’ hear?


Invisible Illness:

Rare Disease Organizations

Primary Immunodeficiency Disease 

Postural Orthostatic Tachycardia Syndrome and Dysautonomia 

Other Resources

18 thoughts on “Resources

    • I went through a time, and still sort of am, slaiimr to what you are saying. I felt I needed to always be the fighter and never show how emotionally tolling being sick and always fighting was. If I felt bad for myself, I immediately felt guilty because there are people out there with cancer. I thought by expressing my anger, grief, pain, and sadness to anyone but my pillow at night, I’d be worrying and letting down those I love. I’ve found it just isn’t true! I wouldn’t expect anyone else in this situation to always be a fighter and never show any painful emotions, so why do I expect it of myself? Also, I was diagnosed in less than a month once we realized POTS was what I probably had. I think it’s horrible it is taking this long for you to get diagnosed!

  1. Just wanted to say Thanks Much for including my blog in your list. It was a nice surprise 🙂

  2. Great resources! Feel free to share my blog –

  3. You are one of the most talented writers on the entire Internet!

  4. I think these old wine lovers would enjoy your post.

  5. I came to the same exact conclusion as you did.

  6. I’m not a big fan of sauce.

  7. I never knew pants came in so many different colors!

  8. Don’t blink or you’ll miss something.

  9. Try not to laugh!

  10. Have yourself a very good day!

  11. Don’t forget the grilled onions!

  12. Way to go Edward. This blog is amazing!

  13. No one can ever say this site is boring!

  14. Would you like some popcorn?

  15. These two are some real messy eaters!

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