Projects Are Happening

I’ve had kind of a whirlwind two weeks. A few things I wanted to get out: 1. I heard you, all of you. Clearly there’s a HUGE issue with chronic illness patients finding local support. I’m working on developing a project that’s going to fix that problem. For updates on that, check out the new…

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The Headache Hat: My New Favorite Thing

I’m on a lot of painkillers right now, but I’m pretty sure I just discovered my new favorite thing. It’s called a Headache Hat. And it’s freaking genius. In fact, I’m not sure why this isn’t a mass-produced product in every CVS in the country. It’s so simple, yet so effective and solves the frustrating…

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Are You Undiagnosed? Share Your Story

It took 19 years for doctors to finally diagnose me with a rare immune deficiency disease. The total number of undiagnosed patients is unknown but considered to be vast. To provide some perspective on this epidemic, consider that it takes an average of 7.6 years in the United States to uncover a rare disease diagnosis. Worldwide there…

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The Balancing Act’s Ongoing “Behind the Mystery: Rare and Genetic Diseases” Series Features Rare Disease Author Ilana Jacqueline

Pompano Beach, FL— One in every ten Americans has a rare disease.  It’s a startling statistic, but it’s one that will help even the healthiest of individuals realize how random the genetic lottery really is. This is also why the patients of the rare disease community have chosen the rarest day of the year to spread awareness. On the…

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Enter to Win! Pill Case Giveaway!

I’m a good person, but sometimes I make bad choices. Like earlier last week when I decided I would dye my hair using boxed dye from CVS in a dark brown when I have never really dyed my hair by myself. I’ve also spent the last four years lightening up my hair with blonde highlights…

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