Thank you to all who submitted stories for the first round of questions in my previous post. Your responses were OUTSTANDING and I’m so excited to be including them in the manuscript. I’m still reading through the many responses so hang tight if I haven’t responded to yours yet!
So here’s the deal: I’m looking to help patients share their story with others through my new book. This book is aimed at the chronic illness patient community and will tackle subjects like career, sex and relationships, self-esteem and support systems.
While I wish I could hear your WHOLE story, I can only take responses to certain questions to highlight patient experiences in each chapter.
Here are some questions I have that coincide with my next few chapters.
Question 1: Did you ever disagree with a doctor’s recommendation for treatment? Did you speak up or just give in and agree? Tell me about one incident in which you either disagreed with a treatment option–how did you feel? What were you thinking? And what did you say and end up doing?
Question 2: When did you feel like you had the least control over your treatment and disease? What made you feel so vulnerable and how did you come out of that place of insecurity?
Question 3: What advice do you have for patients staying overnight in the hospital for the first time? What made you feel most secure and comfortable while in the hospital?
Question 4: Did you ever come across a doctor who thought you were “faking it?” What was your response?
Question 5: Sometimes patients have to search long and hard for the right doctor. How did you know that your doctors was “the one?”
- Please send your responses to IlanaWrites@gmail.com with your name, age, and city. If your story is published, you can choose whether or not to be anonymous! The important thing is to be authentic.
- Please send responses that are NO LONGER than four paragraphs. Try to focus your responses on the message that you feel would help a patient in a similar scenario most.