Port Infection: Longest Story Short (Part 6)

(Catch up on Part 5 here) In the end I had two powerports and a groshong catheter removed, I had an abscess form in my chest. I had to have the incision pulled open, drained and had wound care for several weeks. Yes, it was awful, painful, gross, infuriating, terrifying—and that’s pretty much all the…

Read more

Caring for Someone Who is Stoned After Surgery

The first time I had to go under anesthesia, I cried and cried until the lights went out. I was so afraid that I’d feel everything! But as my Grandpa told me: it will be the best sleep you ever have. And it was! But waking up from anesthesia? Well, that’s not always the easiest…

Read more

Risk.

For days I’ve been trying to wrap my brain around what happened. How did I go from having a functional flare to immobile in my hospital bed after weeks and weeks of barely seeing my own bedroom? How did I go from being able to see my body so abstractly to feeling like I was…

Read more