Dragging Dysautonomia Through My Twenties one Bitchy, Blunt and Belligerent Blog Post at a Time
Pompano Beach, FL— One in every ten Americans has a rare disease. It’s a startling statistic, but it’s one that will help even the healthiest of individuals realize how random the genetic lottery really is. This is also why the patients of the rare disease community have chosen the rarest day of the year to spread awareness. On the…
I come in at the 11:40 mark. Just me asking a question, but hope I’ll get a chance to be on more segments with them!…
The difference between being diagnosed with a rare disease and being diagnosed with breast cancer is a powerful comparison made by Nicole Boise on yesterday’s segment of Unveiling the Mystery: Rare and Genetic Diseases on Lifetime TV’s Daily Morning Talk Show: The Balancing Act. It’s so absolutely PLAIN to anyone with a rare disease, but…
Just a reminder! The Balancing Act on Lifetime TV premieres a new segment called Unvieling The Mystery: Rare and Genetic Diseases tomorrow morning at 7AM. Make sure to tune in! The much anticipated series from the creators of The Balancing Act™ will debut on November 19, 2012 7:00am (ET/PT) on Lifetime Pompano Beach, FL (November 12, 2012) Behind the…
I’ve got the coolest mom. Hands down. For the last couple of months she’s been slaving over a new segment she created as a producer for The Balancing Act, the daily morning talk show airing on Lifetime Television weekday mornings at 7:00 AM ET/PT. The new series is called “Behind the Mystery: Rare and Genetic…
Ilana Jacqueline
27-Year-Old Patient Advocate, Freelance Writer, and Marketing Consultant. Check out IlanaJacqueline.com for more info on working together.
The Book: Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane, Be Your Own Advocate, and Live Your Best Life by New Harbinger coming 2017.
Patient with POTS (Postural Orthostatic Tachycardia Syndrome), Dysautonomia, Hyper-Somnia (suspected Narcolepsy), Gastroparesis, and Primary Immune Deficiency Disease.
Contact: IlanaWrites(@)Gmail.com
