Dragging Dysautonomia Through My Twenties one Bitchy, Blunt and Belligerent Blog Post at a Time
If you’ve been following my Facebook lately–you know I’m having a pretty craptastic week. Monday. Sunday night I was in crazy amounts of pain so Monday morning my mom dragged me, half asleep, to the sleep doctor so we could discuss the option of Xyrem–that’s the new medication for narcolepsy that we’ve been debating putting…
I’m suddenly feeling like all of my pre-engagement creeping on The Knot and Pinterest have me vastly under prepared to be a bride. I know R.J and I won’t be getting married for a good long while–which was discussed at length prior to getting engaged. There’s really no rush so long as we both can get insurance…
But sure I can have that to you in twenty minutes…
(Just wait for it…now my blog is going to get some kind of secret service/American watchlist flag on it.) Someone asked this on the POTS forum today– “What would happen if you had POTS and you went to jail?” The answer– you would be so completely fucked, you might as well just throw up your…
One of the main goals when I signed on board with Global Genes was to give a platform to the many voices of knowledgeable and weathered patients, parents and advocates in the rare and genetic disease community. I wanted to be able to have writers share real stories, tips, and advice. I’m so happy to say that…
To say I’ve been a little stressed about work would be a bit of an understatement these days. Lately I’ve found myself writing non-stop for five or six hours at a time, only looking up to snap a few pictures of Happy. And I’ve actually been thinking about my work schedule a lot. Right now…
The last two days have thankfully been much better. I’m starting to see an improvement and that’s pretty exciting. I had a nervous breakdown in Dr. K’s office yesterday morning about the stress of travelling and being in the hospital—and then we actually started working with the program (the computer program) and I started to…
Contact: IlanaWrites(@)Gmail.com
