Bigger Than My Body Gives Me Credit For

There are days I wish I had already made the decision to get a gastric pacemaker. Or that I had already decided to go on TPN or a feeding tube full time. It feels like these days my stomach is constantly on my mind. Between five surgeries in six months and their ensuing pain treatment…

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Let’s Meet Each Other (& a big THANK YOU!)

Wow. Wow. Wow. To say my last post got a little traction is an understatement. Boy, I ask for help and you guys just turned out of the woodwork. My video got responses from all over the WORLD. I got Facebook messages, emails, comments, hundreds of shares and likes. And that was just from strangers…

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The Headache Hat: My New Favorite Thing

I’m on a lot of painkillers right now, but I’m pretty sure I just discovered my new favorite thing. It’s called a Headache Hat. And it’s freaking genius. In fact, I’m not sure why this isn’t a mass-produced product in every CVS in the country. It’s so simple, yet so effective and solves the frustrating…

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Are You Undiagnosed? Share Your Story

It took 19 years for doctors to finally diagnose me with a rare immune deficiency disease. The total number of undiagnosed patients is unknown but considered to be vast. To provide some perspective on this epidemic, consider that it takes an average of 7.6 years in the United States to uncover a rare disease diagnosis. Worldwide there…

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The Determined Weeper

God, this has just been a week full of weeping. Like full on, mascara running, call my mom ten times more than usual per day, terrify my husband weeping. And the funniest part of it all? Nothing is outrageously wrong. No terrible thing has happened in my life. Nobody died. Nobody called me a name…

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