Dragging Dysautonomia Through My Twenties one Bitchy, Blunt and Belligerent Blog Post at a Time
(Catch up on Part 5 here) In the end I had two powerports and a groshong catheter removed, I had an abscess form in my chest. I had to have the incision pulled open, drained and had wound care for several weeks. Yes, it was awful, painful, gross, infuriating, terrifying—and that’s pretty much all the…
HERE WE GO, GUYS! If you’ve been waiting for the release of Surviving and Thriving with an Invisible Chronic Illness now you’ve got the chance to be one of the FIRST people to read it! New Harbinger in partnership with GoodReads are hosting a giveaway this week so that 10 lucky winners can get…
I know ya’ll mad that I haven’t updated. Don’t worry. I got a taste of my own medicine. That’s what happens when you disappear for a few months to do your thing and leave people wondering, when will she post again? What happened? Does she not realize readers are waiting? Yeah, well that’s exactly what…
I’ve had kind of a whirlwind two weeks. A few things I wanted to get out: 1. I heard you, all of you. Clearly there’s a HUGE issue with chronic illness patients finding local support. I’m working on developing a project that’s going to fix that problem. For updates on that, check out the new…
I’m a good person, but sometimes I make bad choices. Like earlier last week when I decided I would dye my hair using boxed dye from CVS in a dark brown when I have never really dyed my hair by myself. I’ve also spent the last four years lightening up my hair with blonde highlights…
[PLEASE READ ENTIRE POST BEFORE SENDING IN RESPONSES] Whether its your children, spouse, relative or friend–if you consider yourself the caregiver of a patient with chronic illness–I’d like to hear from you! I’m looking for caregivers of patients to respond to the following question for inclusion in a book I’m working on (to be published…
(Sponsored Post) BEEP. BEEP. BEEP. Nobody gets any sleep in the hospital–or maybe they do? That’s what WEGO Health is asking in this new survey to see how patient’s experiences have been in regards to noises in the hospital and how they impact the healing experience. I’ve had the pleasure of working with WEGO Health…
When I was seventeen I had a very different outlook on my disease. I thought to myself, this is going to go one of two ways: The first is that my disease will go into remission, and I’ll be able to have the career I want, the relationship I want, the family I want, the…
For those of you who have followed the saga of Teen Mom 2 and read this blog, you’re probably the most interested in Leah’s story. Leah was one of those 16 & Pregnant stars who struck the double unlucky lightening lottery and wound up with twins during her first pregnancy! And even though she’s had…
Did I mention I’m about to be on your TV this month? Yeah. February 28th (World Rare Disease Day) at 7:00am EST/PT on Lifetime Television. I’m going to be on a show called “The Balancing Act” which is Lifetime’s morning talk show. The segment is for their series, “Behind the Mystery: Rare and Genetic”…
Contact: IlanaWrites(@)Gmail.com
